I am so exhausted. We all are!
Mia is doing better... they were able to complete the entire 24 hours and there wasn't any seizure activity noted. That's good... but boy when she is mad, she is mad!! They almost kept her another night because, as nurse Cindy put it, Mia didn't quite recover from her temper tantrum that she threw during bath time and trach tie change. It was bad enough she had to go on 100% oxygen for a couple of hours, got a stat chest xray, had blood coming from her mouth we assume from biting her tongue or inner cheek... she went all out this time! The xray showed something, but wasn't totally alarming and she finally calmed down after about 3 hours.
She is just now at CRC (this is the first time I'm not with her when she gets transported!) and I will call in a few minutes to see how she's doing.
Today has been especially busy with the moving sale in the morning and also packing and loading the pod from 4:00pm until just about 10:15. We're so grateful for our moms who helped and my brother who helped Robert load and secure everything. We're about 85% done but we are out of boxes and storage bins. Darn. The pod gets picked up in the morning and we also have another moving sale to do at my parents... and Mercedes' soccer game at 10:00am!! Aaahhhh!! We'll get it all done somehow ... :)
I am so tired ...
Goodnight!
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