Sunday, April 12, 2009

Of all places!!

Oh my goodness, this has been a crazy week!! After going through all of the approved hospitals in a 30 mile radius of my parents' home (there were alot!), the few hospitals with NICU's couldn't take Mia because they didn't have the care that she requires (because of the trach/ventilator), then we heard that Stanford was reconsidering for the second time.

Yesterday we found out that, for whatever reason, we HAD to approach Oakland Children's Hospital. We were all hoping and praying that they would deny Mia because of the distance and the town! I had asked Dr. Piroozi, as a joke, if when we called that he made Mia sound as bad as possible so they wouldn't want her! He said he had already thought of that, but then he thought that it might make them accept her even more. So, he decided that he'd call on Sunday morning (a weekend and holiday) hoping that they'd say no.... and, of course... they said they'd accept her!!! =/ We really don't want to have to make that commute everyday - especially to Oakland, but one of the nurses that was there today used to work at Oakland Children's and he was telling us what areas to avoid and that the hospital itself isn't in a bad area, at least that's good!!

Robert's going to call Renee, the Tricare case manager, in the morning to see if we can get out of going to Oakland because it's 47 miles away and with Bay Area traffic, it will make for a very long drive everyday!! If we can get out of it, and if Stanford also says no for the 3rd time, then we can choose to go to Valley Medical where they've already accepted her and the insurance would have no choice but to fully cover it. Of course, we don't want to "burn bridges" with the case manager since we'll be working with her for the long haul, so we'll take Oakland if trying to get out of it will cause more problems. Tonight, the charge nurse wanted us to sign the consent forms to get Mia transported and I believe it would happen as soon as tomorrow! Depending on if we do get out of going to Oakland, we may actually be taking off tomorrow or Tuesday! =) If this is where God wants us, then that's where we're going to be!

Today was good - we got a really late start in the day because we slept in, but got out the door in time to go to our church service/pot luck/egg hunt in the afternoon! It was great seeing everybody again, possibly one last time, before moving! It was funny, Chaplain Suh came up to me and asked how we like the new place! I looked at him and said "what new place?" He thought we moved already!! I told him that if we had moved, we wouldn't be here!! He laughed and said that he thought maybe we came back for the weekend. haha No, we wouldn't be coming back to Vegas just for a weekend!! =)

Mia's doing well - Jessica thought she saw some seizure activity last night, though, because she had never seen Mia act that certain way before, but we don't know for sure. Jessica said that Mia was awake from midnight until 8am, though!! That explains why she was asleep all day!! Oh well... she's still beautiful when she's sleeping! =)

Well I must get some sleep now... hopefully these hiccups will go away soon!!

Continue praying for our family! We'll keep you posted as soon as we hear where and when we're going! =)

Happy Resurrection Day!

Rachael <3

2 comments:

  1. Robert and Rachel,
    I've been keeping up with your family via your blog... it's wonderful to be able to read your frequent updates. Have been praying for your family and will continue to as well as you guys make a big move. I would love to come and visit and meet Mia, since we'll be close (I'm still in San Jose).

    Blessings,
    kacie

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  2. our prayers and thoughts are sent your way!

    ReplyDelete