Saturday, April 18, 2009

More Updates From the Bay

Hi All, sorry for the lack of updates in the past couple of days. It's been pretty hectic going back and forth to the hospital.

So far Mia has been pretty good. Yesterday she did have a little bit of a rough day in the afternoon and early evening. For whatever reason she looked very uncomfortable and kept on arching her back a lot. Her lower body was cool and clammy while her head was very hot to the touch. Her body temperature showed her a little on the cool side but she acted like she was over heating. Her breathing was also a much different pattern then we had seen before. She would take two short breaths and then one deep breath that she would hold for almost a second. The nurses and respiratory therapist didn't think much about it but we told them that she has never breathed in that manner before. The one thing that Rachael did manage to put together was that they put Mia on Albuterol for her lungs (her right lung is a little collapsed). We are wondering if that was causing the increased agitation in Mia. The nurse said that she would mention it to the Doctors and see what they thought.

So, the good news is that Mia's breathing has been much more consistent. For the most part she has been initiating all of her breaths while on the ventilator. There has only been a few times where she rides the vent for a few seconds or so. We are happy to see this progression but we really would like to know what caused the dramatic change.

So on the logistics side of things Rachael and I working out a game plan for being at Oakland for a couple of weeks. The one thing we have figured out is this is going to be very taxing on us. We are doing what we can to make things easier - Robert's aunt and cousin both offered their home for us to stay at whenever we don't want to drive all the way down to San Jose, so we've taken them up on the offer. We also just found out that our insurance company does have a program to help with situations like ours where we are a long ways from home and have a lot of travel expenses. It sounds like if we qualify that we will get a lot of the expenses for driving, parking tolls, and food covered which will be a huge relief for us. We will be sending in the paperwork on Monday and hopefully will find out if we qualify in about a week or so. We're praying that we do! If we don't, we know God will provide.

Robert's aunt mentioned that some classes from her school reads Mia's blog every morning, so that got us thinking... if you've ever read the blog and have prayed for Mia, we'd love to know! This would be an amazing thing for her to know when she's older that so many people all around the world prayed for her life and healing. We encourage you to participate.
Email Rachael with:
  • Each name of the person praying for Mia
  • Location (City, State, Country)
  • Age (if they're kids under 15)
  • Email the infomation to rachaeladamis@yahoo.com
We did visit Children's Recovery Center on Thursday and got a tour of it and it looks very good! We were able to talk with the lady I've been on contact with for the past 4 weeks and found out that the bed they were holding for Mia was filled, but that there should be a bed available in the next couple of weeks. Mia is next on the list!! Oakland will care for Mia until the bed is available. We're looking forward to only having to drive about 8 minutes vs over an hour to see our baby girl!!

Keep praying for Mia's healing!

Robert and Rachael Adamis

4 comments:

  1. We are praying for you. I hope that we can work a visit in here soon to see you and Mia. Let us know if there is any way we could help.

    Love you,
    Katie

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  2. Praying for sweet Mia! So happy to hear that her breathing is improving.

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  3. The symptoms you talked about could be from the Albuterol. I know it makes my kids hyper and speeds up my heart rate when I have to use it. I hope the doctors will be able to tell you for sure though.
    Still praying for Mia.

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  4. Hi, I'm a friend of Stefanie Arnold and she sent me your blog address. Our daughter just had heart surgery and she was born on Feb.7, 2009. I understand how hard it can be to have a sick baby. My heart is heavy for you. I wanted to let you know about Carepages.com which is a great way to blog and also to let friends post messages. We used it when our daughter was at UCSF. I will pray for Mia and this difficult trial for you and your husband.

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